Watching: 2008.08.22 lila in grandpa and grandmas tub

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	Snapshot of Sophia (WDIO-TV-Duluth, MN) Posted by: benjilake Video duration: 324 seconds Sophia is our inspiration, as illustrated by this wonderful video produced by WDIO-TV in Duluth, MN Related: sma

$2008.09.04 Sophia\$	2008.09.04 Sophia's 1st bus ride to kindegarten Posted by: benjilake Video duration: 309 seconds It sure was a thrill watching Sophia board the bus for her 1st day of kindegarten! Related: atrophy, bus, kindegarten, muscular, sma, spinal

	Audrey 2 (Ars Longa, vita brevis-chor. by Kari Jensen) Posted by: benjilake Video duration: 199 seconds Audrey, one of Sophia's nures, (now in Utah) performs onstage. Related: ballet, dance, music

	2007.9.11. Sophia, Lila, and Nurse Audrey outside. Posted by: benjilake Video duration: 331 seconds Check out Sophia, just 1 week after growth rod surgery. She is four years old, and had 2 rods, 8 screws, and 2 cables placed in her back...she is an amazing child! Related: chair, power, sma

	2007.9.3.Sophia Just before Spinal Growth Rod Surgery Part 1 Posted by: benjilake Video duration: 79 seconds Sophia has Spinal Muscular Atrophy (SMA) Type 1. She is four years old. This video was taken 1 day before she underwent spinal growth rod surgery at the University of Wisconsin Madison Children's Hospital. Related: powerchair, sma

Audrey I (Ars Longa, vita brevis-chor. by Kari Jensen)
Posted by: benjilake

Video duration: 260 seconds

Audrey is not only a wonderful nurse and dear friend to Sophia, but a very talented dancer as well. We took our daughter, Sophia, to the fringe festival to watch Audrey dance. Lots of dancers in this video, and at times, Sophia would lose track of her. You can hear Sophia frequently, asking, "...where's Audrey?"

Related: ballet, dance, nurse

	2004.7.11. Andrea and Sophia in wading pool II Posted by: benjilake Video duration: 103 seconds Mommy and Sophia having fun in our $12 swimming pool. Related: sma, swimming

	2007.9.3.Sophia Just before Spinal Growth Rod Surgery Part 2 Posted by: benjilake Video duration: 74 seconds Sophia has Spinal Muscular Atrophy (SMA) Type 1. She is four years old. This video was taken 1 day before she underwent spinal growth rod surgery at the University of Wisconsin Madison Children's Hospital. Related: chair, power, sma

	Hanging out with the nephews Posted by: benjilake Video duration: 166 seconds My wife's brother and his two sons stopped by for a brief visit. Check out my two cool nephews. Related: extreme, faceplant, nephew, sports, tree, tricycle

	2008.18.14 Posted by: benjilake Video duration: 52 seconds If a kid's gotta use a stander, might as well have fun! Related: disability, sma, stander

	2008.05.04 Lila chasing a wheel Posted by: benjilake Video duration: 81 seconds An empty parking lot, a jogger wheel, and a 3.5 year-old...who knew life could be so much fun? This was taken with my cell phone, so please forgive the low resolution. Related: chase, chasing, funny, girl, wheel

	2008.08.23 Lila, Keaton, Sydney zooming down Lake Ave Posted by: benjilake Video duration: 134 seconds Lila and Keaton play with Sydney, the neighbor girl. Related: scooter, street

	2008.08.22 Lila, Grandpa, and Grandma at Zorbaz Posted by: benjilake Video duration: 106 seconds Lila is in her element! Related: beer, grandma, grandpa, laughing, lila, outside, pizza

	2008.08.23 Lila and Keaton city (rec) park I Posted by: benjilake Video duration: 95 seconds My best friend's youngest boy plays with my youngest daughter Related: family, grandma, outside, park, sand, slide

$2008.08.22 Lila in Grandpa and Grandma\$	2008.08.22 Lila in Grandpa and Grandma's tub Posted by: benjilake Video duration: 97 seconds Lila takes a bath and starts to feel better. Related: lila

	2007.6.4. Sophia in our playground II Posted by: benjilake Video duration: 71 seconds Driving in our yard, enjoying the new swingset Related: atrophy, chair, muscular, power, sms, spinal

	Flying Sophia Posted by: benjilake Video duration: 78 seconds I made this video with Laura, one of Sophia's nurses. The person we are addressing at the beginning of the video is Sophia's primary physician, and an expert on SMA. Related: atrophy, muscular, sma, spinal

	2008.08.23 Lila and Keaton city (rec) park II Posted by: benjilake Video duration: 123 seconds lila and keaton play in the park Related: grandma, park, slide

	Lila in the Curtains Posted by: benjilake Video duration: 55 seconds test Related: test

	2006.9.12. sophia and daddy swinging Posted by: benjilake Video duration: 58 seconds Catching a bit of air with Sophia Related: park, swinging

	2007.9.3.Sophia Just before Spinal Growth Rod Surgery Part 3 Posted by: benjilake Video duration: 77 seconds Part 3. Sophia has Spinal Muscular Atrophy (SMA) Type 1. She is four years old. Part 3. This video was taken 1 day before she underwent spinal growth rod surgery at the University of Wisconsin Madison Children's Hospital. Related: chair, power, sma

$2007 10.23 \"Tante Karin\" Reads Cinderella to Sophia III$	2007 10.23 "Tante Karin" Reads Cinderella to Sophia III Posted by: benjilake Video duration: 94 seconds The tail end of Cinderella Related: cinderella, sma

	2006.10.28. Playing at the park I Posted by: benjilake Video duration: 105 seconds Lila and Sophia enjoying a nice day at the park Related: park, playing

$SMA Gathering at Faith\$	SMA Gathering at Faith's Lodge (Produced by Todd McDanel) Posted by: benjilake Video duration: 324 seconds We had fun hanging out and watching our kids enjoye each other. Related: atrophy, family, friends, hope, muscular, sma, spinal

	2004.6.24. Sophia snoozing at cabin Posted by: benjilake Video duration: 106 seconds Sophia sleeping (without bi-pap) at Bill and Judi's cabin....just under one year old. Related: sleeping, sma

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