18 month old Teresa playing with Jennifer from FBC
Posted by: HelpTeresa
Video duration: 110 seconds
Global video hits: 50
18 month old Teresa playing with Jennifer from FBC. Teresa is dying and we need your help please talk about Sandhoff and other Lysosomal diseases.
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ARIEYELLE DEEP SUCTIONING TERESA
Posted by: HelpTeresa
Video duration: 133 seconds
Global video hits: 54
TERESA CAN NO LONGER SWALLOW AND NEEDS TO BE SUCTIONED PLEASE HELP TALK ABOUT SANDHOFF DISEASE!!
Related: disease , help , hidandseek , liahla , lysosomal , nb , ntsad , ridaz , sandoff , teresa , zigzag
HELP TERESA EVENT INTRO NOV.22
Posted by: HelpTeresa
Video duration: 119 seconds
Global video hits: 24
PATRICK INTRO HELP TERESA EVENT NOV.22 TERESA IS DYING OF SANDHOFF PLEASE GET INVOLVED!!!
Related: disease , help , hidandseek , liahla , lysosomal , nb , ntsad , ridaz , sandoff , teresa , zigzag
My aerosol compresser ("Ultrasonic Nebulizer").
Posted by: 1992peter
Video duration: 175 seconds
Global video hits: 91
Here is my ultrasonic nebulizer.
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My Equipment
Posted by: 1992peter
Video duration: 316 seconds
Global video hits: 144
Here is a little tour of my room. You will see TUNS of equipment. Its pretty cool. Equipment such as my CCTV, Computer Braille Notetaker, Mist compresser Suction machine etc.
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H&S INFO-SLIDE
Posted by: Lysosomal
Video duration: 84 seconds
Global video hits: 46
INFO OUT ABOUT LYSOSOMAL DISEASE.
VISIT WWW.HIDEANDSEEK.ORG< br />
IT IS TME YOU KNOW!
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The Many Faces of Lysosomal Disease #2
Posted by: Lysosomal
Video duration: 205 seconds
Global video hits: 221
LYSOSOMAL DISEASE IS KILLING OUR CHILDREN AND TAKING THE LIVES OF OTHERS.
HELP US EDUCATE THE WORLD ABOUT LYSOSOMAL DISEASE.
Related: 64 , adult , alpha , aspartylgucosaminuria , battens , beta , cln , ctsd , cystinosis , danon , disease , disorder , enzyme , epilepsy , fabry , farber , fucosidosis , galacttosialidosis , gaucher , gm1 , gm2 , hunter , hurler , infantile , issc , juvenile , krabbe , kufs , lamy , late , leukodystrophy , lysosomal , lysosome , mannodosidosis , maroteaux , metachromatic , morquio , niemann , northern , onste , organelle , pick , pompe , pycnodysostosis , sachs , sailidosis , salla , sandhoff , sanfilippo , schindler , sly , syndrome , tay , tppi , wolman
LYSO-WHAT IF?
Posted by: Lysosomal
Video duration: 64 seconds
Global video hits: 93
What if it was your child?
Lysosomal disease is killing our children!
IT IS TIME YOU KNOW!
VISIT WWW.HIDEANDSEEK.ORG
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H&S WEB INTRO
Posted by: Lysosomal
Video duration: 104 seconds
Global video hits: 157
STEPHANIE @ H&S WEB INTRO
VISIT WWW.HIDEANDSEEK.ORG
Related: 64 , adult , alpha , and , aspartylgucosaminuria , battens , beta , cln , ctsd , cystinosis , danon , disease , disorder , enzyme , epilepsy , fabry , farber , fucosidosis , galacttosialidosis , gaucher , gm1 , gm2 , hide , hunter , hurler , infantile , issc , juvenile , krabbe , kufs , lamy , late , leukodystrophy , lyn , lyso , lysosomal , lysosome , mannodosidosis , maroteaux , metachromatic , morquio , niemann , northern , onste , organelle , pick , pompe , pycnodysostosis , sachs , sailidosis , salla , sandhoff , sanfilippo , schindler , seek , sly , stephanie , stoelt , syndrome , tay , tppi , what , wolman
X Files and Lysosomal Disease
Posted by: Lysosomal
Video duration: 47 seconds
Global video hits: 190
X-Files the movie and Lysosomal disease
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Sandhoff Disease in Honor of my daughter Kacee
Posted by: iamasmartassgirl
Video duration: 279 seconds
Global video hits: 451
This video is to honor my daughter Kacee who passed away of sandhoff disease...this is the first video I have ever made for YouTube please be kind I would love comments on how it turned out making it made me cry !!!!I do not own the rights to Michael Buble's I can't help falling in love with you but I do own the rights to all of the pictures you are viewing in this video
Related: angel , daughter , disease , my , sandhoff
Wilms Flute Concerto 3rd Mvt
Posted by: JMPCOMPOSER
Video duration: 414 seconds
Global video hits: 137
This is the 3rd movement of the Flute Concerto in D composed by J.W.Wilms. Here, it's played by Martin Sandhoff and Kolner Akademie.
Related: music
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